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Alex, the Leukodystrophy Charity

Registered charity 1106008, on the register since 23 September 2004. The 8,973rd largest charity in England and Wales by income.

What it says it does

A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.

In the charity's own words, as filed with the Charity Commission.

Its causes

DisabilityEducation/trainingThe Advancement Of Health Or Saving Of Lives

Where it works

It names no single council area: it works across England and Wales, or further.

Check it yourself

Its entry on the Charity Commission register · its own website

Figures are the latest the charity has reported to the Charity Commission, current to 27 September 2026. How this site works.