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The Lily Foundation

Registered charity 1122071, on the register since 19 December 2007. The 8,898th largest charity in England and Wales by income.

What it says it does

We fund research to improve diagnosis, develop treatments and we hope to ultimately find a cure for Mitochondrial Disease. We help build support networks by connecting affected families and also offer direct family support. We aim to raise awareness of mitochondrial disease by improving patient access to information, supporting professional training, and speaking at schools and public events.

In the charity's own words, as filed with the Charity Commission.

Its causes

DisabilityEducation/trainingThe Advancement Of Health Or Saving Of Lives

Where it works

It names no single council area: it works across England and Wales, or further.

Check it yourself

Its entry on the Charity Commission register · its own website

Figures are the latest the charity has reported to the Charity Commission, current to 27 September 2026. How this site works.